I took a breathing test as a base line. Since Amiodoran causes side effects that impair lung function, this test will give doctors an indicator of my lung capacity pre-meds. The breathing chamber resembles a space machine. The chamber is glass, I sit in it, and the nurse operating it is sitting outside. We communicate through a speaker. I have to put a mouthpiece and breath through it. She controls the airflow to the mouth piece.
It is very quiet in the chamber. Almost too quiet. My mind wanders, mostly thinking of Tala and Aboudi; what they’re up to.. who’s taking care of them? when mom isn’t here, she’s with them, so they’re safe.
The test is somewhat uncomfortable. The fact that I’m in a glass enclosure makes it tolerable. But the breathing apparatus and the tests are tiring. I can barely take in a breath without wheezing. Not sure how much worse my lungs can get.. but I guess the doctors know what they need to do.
I have bruises under my rib cage and on my back; the effects of ICD shocks.
Today, I began taking Amiodoran 600mg. A medication with scary side effects ranging from kidney failure to blindness. Here’s a few I read about..
Abnormal skin sensations (loss of sensation; tingling; numbness; prickling); bitter taste in mouth; blue-green discoloring of skin; constipation; dizziness; dry eyes; flushing of the face; general body discomfort; headache; involuntary muscle movements; loss of appetite; poor coordination; trouble sleeping; vomiting.
I’m told its a newly approved medication that is more suitable for someone my age. In contrast to Beta Blockers and Calcium Channel Blockers that leave the patient lethargic, this one allows young heart patients to remain active. Well, sort of active.. with Amiodoran, I have to keep away from the sun; how do I do that with two kids under the age of 4? they need to be out in gardens and on the beach! I can deal with the rest, but I hate to think that I cannot spend time with them outdoors as I had done.
I had the EP study, it felt terrible. I felt I was running without stopping for hours. I was about to throw up but feared choking. I was shocked a couple of times with a defibrillator. They had run three catheter tubes through the groin and I had to lay still for 2 hours. I had sever pain in my shins.
Went to see Dr. Tracy with difficulty breathing and getting out of bed. I was switched to Calcium Channel Blockers. She concluded from a brief interrogation that Dr. Del-Negro maybe wrong about the V-Tach.
I was discharged from Fairfax hospital with orders from Esposito to get off Maxilitien and on Beta-Blockers. I don’t like Dr. Esposito. He has poor bedside manners, he leaves me feeling weak and scared, and worst of all, the meds he prescribes are awful!
Dr. Del-Negro conducted an EP study and concluded no V-Tach had occurred by mimicking the wave patterns of a fax he received from Dr. Tracy.